Today is the eve of Brian’s 21st birthday- I really can’t believe it- how is this even remotely possible? Where have the past 2 decades plus gone? Our baby-faced young man will always be our boy, no matter how old he is or what he does. I have been especially nostalgic today, thinking of when Brian was first born and the many struggles that awaited him. Those early days were so hard, especially with the plethora of medical challenges that required so much of our son and ourselves. I remember thinking how were we going to get through all of these obstacles… Some of these struggles ended up being temporary , and others were meant for a lifetime…The reality was that during many days we were not successful at all, in fact, we were broken in heart and spirit. Those days were especially long…We clung to one another and our faith in great desperation. Conversely, other days were sublime and victorious, a “shout from the mountain top” kind of experience that we still savor even today. No matter what type of day it was , Brian ultimately remained steadfast and did not waver in forging ahead, regardless of what was happening to him- and he is still like this today. Our son is a fighter, who trusts and believes – he knows no other way- even if his challenges are insurmountable.

We have marveled over the years how Brian keeps going, despite what he faces daily, never complaining or bitter about his lot in life. I am so very proud of Brian and what he has taught me about his life has helped me to live my own in a better, more authentic way. I am very grateful to Brian for that, for he continues to show me what is truly important in this passing life and what matters most: love, kindness, appreciation for simple things, honesty, loyalty and sacrifice.

Although Brian can’t speak, (albeit some words) I know he understands a LOT! I look forward to Heaven when he will speak and we will have many conversations together…In the meantime, here on earth, Jim and I continue to learn how to communicate with Brian and he with us- it has much improved and will always be ongoing. We have all come so far in this regard in 21 years!

One of my favorite modes of communication is writing and without further delay, it is time for a birthday letter to our Joy Ambassador in honor of his 21 years of life:

Dearest Brian,

It is with great emotion and love that I write this letter to you on the eve of your 21st birthday. I have been teary-eyed most of today thinking of the many memories we have shared together since your arrival on August 25, 2003 at 11:30 pm. I will never forget that night for the rest of my life and I’m sure you won’t either! You came into the world as a fighter and I have no doubt that when God calls you home one day, you will still have that same fighting spirit…

What a life you have lead! You have shown Mom and Dad over the past 2 decades plus that life is worth living and can still be joyful, despite its many sorrows and challenges. You are Strength Personified and humble us daily with the challenges that you manage . We marvel at your determination to run the race that has been given to you and will always cheer you from the sidelines.

Thank you, Son, for being the best thing that has happened to Dad and I. Some of our greatest joys and happiest moments have been because of you. You have added humor, love and great purpose to our lives. Yes, we do get frustrated with the challenges of your disabilities sometimes and the exhaustion is real. These things are a part of the life that we lead and together we do the best we can. We are not a perfect family, but together we are perfect for one another.

As you complete your 21st year tomorrow and begin your 22nd year, we pray that you will continue to persevere and run the good race that you have been given. May you remain joyful, curious and willing to learn new things. Always know that Dad and I are so very proud of you and believe that anything is possible for you…Beloved Brian, you represent all that is beautiful and good; we love you so very much! Happy, Happy 21st Birthday! You have won our hearts forever! God will continue to bless you, Son, I know He will…

Love you to eternity and beyond,

Mom and Dad 😘😘😘❤️❤️❤️🎉🎉🎉🎉